General Resources
Resources to access health insurance
California: www.healthforcalifornia.com
Accessing medical records
SDY Advocacy Organizations
Medical resources
Find a general cardiologist
Crisis Intervention and Mental Health Resources
988 Suicide Lifeline
Call or text 988 to speak with a caring crisis counselor
Languages: ASL, English, Spanish | Hours: 24/7
Mental Health Association of San Francisco
Call or text 855-600-9276 Non-crisis emotional support phone and chat line
Languages: English, Spanish | Hours: 24/7
Carson’s Village
Supports individuals who suddenly lost a loved one with: making burial arrangements, a timeline of events, resource library, live support, a family web page, and more.
Disease Specific Resources
Cardiomyopathy
Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C) Registry
Hypertrophic Cardiomyopathy Association (HCMA)
Children's Cardiomyopathy Association
Arrhythmia
Long QT Syndrome (LQTS) Registry
Vascular
Vascular Ehlers Danlos Syndrome (vEDS/EDSIV)
Congenital Heart Defects
https://www.nhlbi.nih.gov/health/health-topics/topics/chd
Cardiac Arrest Survivors
Virtual ICD Support Group
Grief and Loss Support Resources
Psychologist finder
American Psychologist Association
Cardiovascular Genetic Counseling Services
Grief Resources
https://griefcounselor.org/resources/helpful-websites/
http://www.griefwatch.com/resources.html
http://www.nfda.org/consumer-resources/grief-support
Local hospitals/churches often have support groups.
Hospice providers are very knowledgeable about resources available in their communities.
Professional Medical Resources
Coronary Heart Disease
ACC/AHA guideline on Atherosclerotic Coronary Vascular Disease (2013)
Stroke
AHA/ASA Stroke Prevention Guideline (2014)
Thoracic Aortic Disease
ACCF/AHA/AATS/ACR/ASA/SCA/SCAI/STS/SVM Guideline on Thoracic Aortic Disease (2010)
Genetic Arrhythmias and Cardiomyopathies
EHRA/HRS/APHRS Consensus on Inherited Primary Arrhythmia Syndromes (2013)
ACCF/AHA Guideline on Hypertrophic Cardiomyopathy (2011)
HFSA Guideline on Genetic Cardiomyopathy (2009)
HRS/EHRA Consensus of Genetic Evaluation for Channelopathies and Cardiomyopathies (2011)
General Health
US Preventative Services Task Force
Diet and Lifestyle