General Resources
Disease Specific Resources
Cardiomyopathy
Arrhythmogenic Right Ventricular Dysplasia/Cardiomyopathy (ARVD/C) Registry
Hypertrophic Cardiomyopathy Association (HCMA)
Children's Cardiomyopathy Association
Arrhythmia
Long QT Syndrome (LQTS) Registry
Vascular
Vascular Ehlers Danlos Syndrome (vEDS/EDSIV)
Thoracic Aortic Aneurysm/Dissection (TAAD)
Congenital Heart Defects
https://www.nhlbi.nih.gov/health/health-topics/topics/chd
Cardiac Arrest Survivors
Sudden Cardiac Arrest Association
Virtual ICD Support Group
Grief and Loss Support Resources
Grief and Loss Support Resources
Psychologist finder
American Psychologist Association
Cardiovascular Genetic Counseling Services
Grief Resources
https://griefcounselor.org/resources/helpful-websites/
http://www.griefwatch.com/resources.html
http://www.nfda.org/consumer-resources/grief-support
Local hospitals/churches often have support groups.
Hospice providers are very knowledgeable about resources available in their communities.
Professional Medical Resources
Coronary Heart Disease
ACC/AHA guideline on Atherosclerotic Coronary Vascular Disease (2013)
Stroke
AHA/ASA Stroke Prevention Guideline (2014)
Thoracic Aortic Disease
ACCF/AHA/AATS/ACR/ASA/SCA/SCAI/STS/SVM Guideline on Thoracic Aortic Disease (2010)
Genetic Arrhythmias and Cardiomyopathies
EHRA/HRS/APHRS Consensus on Inherited Primary Arrhythmia Syndromes (2013)
ACCF/AHA Guideline on Hypertrophic Cardiomyopathy (2011)
HFSA Guideline on Genetic Cardiomyopathy (2009)
HRS/EHRA Consensus of Genetic Evaluation for Channelopathies and Cardiomyopathies (2011)
General Health
US Preventative Services Task Force
Diet and Lifestyle